Your family will always be involved in data donation

Just as with organ donation, it’s important to share your decision about data donation with your loved ones. While the choice is ultimately yours, talking openly with family and friends can help them understand your wishes and the potential impact of your digital legacy. Explain how your data could contribute to scientific advancements and societal improvements. Address any concerns they might have about privacy or data security. By involving them in the conversation, you can ensure your wishes are respected and potentially inspire others to consider data donation. Remember, these discussions can be opportunities to reflect on your values and the mark you want to leave on the world.

Your family can overturn your decision

Each year opportunities for data donation are missed because families don’t know what to do.

Your family will always be consulted about whether you wanted to be a data donor or not, and we will never proceed with data donation if your family or loved ones object.

Leave them certain

If you want to donate

If you want to be a data donor after you die, it’s really important that you talk to your loved ones and make sure they understand your data donation decision. You can also register your decision on the Data Donor Register.

If you don’t want to donate

If you decide not to become a data donor, you can still help your family by talking to them about your organ donation decision now, and making sure they know what you want. You can also register your decision on the online Data Donor Register.

Register your decision

Donor’s stories

Tom

“Just as we can give life through organ donation, we can give knowledge through data donation. My digital footprint will continue to make a difference long after I’m gone.”

Liz

“My grandkids are growing up in a world driven by data. If my information can help make that world better for them, I’m all for it.”

Mike

“I’ve always believed in the importance of scientific research. Data donation lets me support that cause even after I’m no longer here.”