What is the Data Donation Scheme?
The Data Donation Scheme is a program that allows individuals to donate their digital data posthumously for scientific research and societal benefit.
Why should I consider donating my data?
By donating your data, you can contribute to scientific advancements, medical research, and technological innovations even after your death. Your data could help develop new treatments, improve public services, or solve complex societal issues.
What types of data can I donate?
You can donate various types of digital data, including but not limited to:
- Medical records
- Fitness tracker data
- Social media activity
- Online shopping history
- Browsing history
- Smartphone usage data
- Financial records
Can I choose what data to donate?
Yes, you have full control over what types of data you wish to donate. You can specify your preferences when you register.
How is my privacy protected?
We take privacy very seriously. All donated data is anonymized before being made available for research. Personal identifiers are removed to ensure your privacy is maintained.
Who has access to my donated data?
Only approved research institutions and projects have access to the anonymized data. We have a strict vetting process for all data requests.
Can my data be used for commercial purposes?
By default, your data will only be used for non-profit research. However, you can opt to allow commercial research if you wish.
How do I sign up to be a data donor?
You can register online through our secure portal, by phone, or by filling out a paper form available at various locations.
Can I change my mind after registering?
Yes, you can modify or withdraw your consent at any time by logging into your account or contacting our support team.
What happens to my data after I die?
After your death is confirmed, our team will begin the process of collecting and anonymizing your data according to your specified preferences.
Do I need to inform my family about my decision?
While not mandatory, we strongly encourage you to discuss your decision with your family. This helps ensure your wishes are understood and respected.
Is data donation legal?
Yes, data donation is legal. Our scheme operates within all relevant data protection and privacy laws.
How do you ensure ethical use of donated data?
We have an ethics board that reviews all research proposals. Only projects that meet our strict ethical guidelines are approved to use donated data.
Can my family override my decision after I’m gone?
Your decision to donate data is legally binding. However, in sensitive situations, we may consult with your next of kin.
How is my data collected after I’m gone?
We work with various digital service providers to securely collect the data you’ve agreed to donate.
What if my data is stored in multiple places?
Our team is experienced in collecting data from various sources. You can provide information about your digital accounts during registration to facilitate this process.
How long will my data be stored and used?
Your data will be stored securely and used for research purposes indefinitely, unless you specify a time limit in your donation preferences.
If you have any questions not covered here, please don’t hesitate to contact our support team.
Data Donor Card 