Data Donor Card

What is data donation?

Data donation is the act of giving consent for your digital information to be used for research purposes after your death. This can include various types of data such as medical records, social media activity, fitness tracker information, and other digital footprints.

Why is data donation important?

In today’s digital age, the data we generate throughout our lives has immense value for scientific research, public health initiatives, and technological advancements. By donating your data, you can contribute to:

  • Medical breakthroughs and improved healthcare
  • Development of artificial intelligence and machine learning technologies
  • Social science research and policy making
  • Environmental studies and climate change solutions

How does the scheme work?

  1. Opt-in: You can register your decision to become a data donor through our online portal or by filling out a paper form.
  2. Specify your preferences: You can choose which types of data you’re willing to donate and for what purposes.
  3. Inform your family: We encourage you to discuss your decision with your family and friends.
  4. Secure storage: Your preferences are securely stored in our database.
  5. Posthumous activation: After your death, your nominated representative or next of kin will be contacted to confirm your wishes.
  6. Data collection and anonymisation: Approved institutions will collect and anonymise your data.
  7. Research use: Your data will be used for approved research projects in line with your stated preferences.

Is my data secure?

We take data security extremely seriously. All donated data is anonymised before being made available for research. We adhere to the highest standards of data protection and regularly update our security measures to protect against breaches.

Can I change my mind?

Yes, you can change your donation decision at any time. Simply log in to your account on our portal or contact us to update your preferences.

Who can donate?

Anyone aged 18 or over can register to be a data donor. There are no upper age limits or restrictions based on medical conditions.

How do I register?

You can register your decision to be a data donor by:

  1. Visiting our online portal Register
  2. Filling out a paper form to get your Data Donor Card Printable card

For more information or if you have any questions, please don’t hesitate to contact us info@datadonorcard.org.